It has been quite a while since I have been on here. We have had some seizure complications and have not had much time to update. The good news is Meg started ACTH by daily injection on December 1st to control the mycolonic seizures and is responding well.
It is Christmas Day and it has been a great one. Very calm and relaxing. Aunt Gwen, Uncle Mike, Amber and Erin are here from Atlanta to spend it with us. It has been fun to have them here. Meg loves to hang with cousing Amber too and it has been helpful to me. One of the side effects of the ACTH is "sleep disturbance". For here it means from about 1 am to 5 am. Amber got up with her Tuesday night and let me go back to bed. It was nice. Wish she could stay here but at 18 she has places to go!!!!