Lots of stuff happened in the past week.  James got his braces on today. Should be about 18 months to a perfect smile.  He still looks cute.  Braces are not what they used to be.  Megan had her sleep study last Thursday night to look at decannulating the trach.  Dont have the results from the Dr. yet officially, but I think the data they got was in her favor.  I hope it was in her favor.  She was very mad about the entire thing – she knew she was in the hospital for sure!  I spent the entire night standing at the side of the crib she was in so she would not scream and they could record some sleep material.  It was a night to remember!

New hair cut – mixed feelings about this.  Pat is very upset that I cut her hair.  It will be so much more comfy for her.

My fairy princess

Could not resist – she was sleeping so I had to sneak in the fairy wings and the wand – I could never get this if she was awake!

 

 

Get Fit Tri

Today was the Get Fit Tri – Lance Armstrong Live Strong Youth Tri Series.  It was the second annual and the benefactors were once again Megan and this year Clouds of Hope was included.  Clouds of Hope is the NFP my friend Renee created (she is also fighting a battle for her youngest daughter) that is working on getting the all inclusive park built here for all children to play – differently abled ones too.  Megan was in the calendar that her daughter was in last year also for the park.  Beautiful day today.  Girl Scouts did an over the top job again and worked their little  butts off – their Mommy’s too.  Sponsorships to get this thing to happen were harder to come by this year too which made it even more challenging.  James participated again – Ryan says if it happens next year he will do it too, and so will Daddy.  Brenda Golterman, Beth McCullough, Carole Dale – women I respect and admire.  They are teaching their girls right. No doubt about it.  We are blessed to have people like this i our corner.

      

Getting Stronger!